In mid June Rusty’s seizures increased in frequency and his MDAnderson neurologist increased his anti-seizure medication. He has had infrequent small facial motor seizures due to the effects of radiation to the brain. The medication did the trick as far as stopping the seizures, but has caused him to have more trouble walking...balance and coordination are impaired, and his legs fatigue easily. So, early this week he became the proud owner of a three wheel scooter. It has made a wonderful difference in his quality of life...he is happy with it and promises to learn to practice moderation with the speed.
We changed our usual Houston routine for this July 2 visit since the travel trailer is in the shop for axle repair. We flew to Houston on Tuesday morning with plans to fly home Tuesday evening after the last appointment. MDAnderson was doubly crowded on Tuesday because of theThursday holiday, so appointments backed up and we missed the last flight to Corpus Christi Tuesday. We stayed over in Houston at the MDAnderson Rotary House hotel Tuesday night and flew home on Wednesday morning. Southwest Airlines was wonderful about changing our flight at no cost citing a “medical exemption.”
Uneventful medical visits this time. Labs were good, visit with melanoma team was positive and the immunotherapy infusion was routine. Next visit Rusty will have brain MRI and Body CT scans for “restaging”...checking for tumor activity.
Our next visit is scheduled for July 29 and 30. In the meantime we plan a 10 day trip to the Ozark Mountains. Please keep the prayers and good wishes coming. You all give us strength, and we are grateful.
Glad all is well❤
ReplyDeleteKeep the rubber side down, speed racer🍀